Navigating my HD Journey: A Recent Update
Hey guys, I've been debating whether to write this blog because it's still fresh, concluding just in February. But I think it's important to lay it all out for you. Every year, I have this big annual checkup with my whole squad of Huntington’s disease specialists and neurologists at Kaiser. It's always a bit nerve-wracking because it’s tons of tests, and after four hours, I’m exhausted. The experience is really hard but it’s an important benchmark to track how I’m doing and how the disease is progressing and what medical support I will need for the upcoming year. This chapter of the story began in Spring/Summer of 2023. It was rough. I dropped weight, got and stayed sick, and couldn't sleep. Sleeping issues are especially unusual for me, I could snooze through anything since I was a kid. My sister-in-law even started voicing concern, wondering if it was my HD or something else. So, in August 2023, I went to my HD specialists, and found that yes, some of it was m...