HD Warriors: Honoring My Beautiful Friend Stacy Cushenberry
Hello and happy summer to you all! I’ve been thinking about what to share with you next, and I kept coming back to this feeling in my heart about highlighting another amazing HD warrior. Her name is Stacy Cushenberry , and if you’ve ever had the privilege of meeting her, you know just how special she is. Stacy was the very first person I met at my very first HDSA National Convention, many years ago. I remember feeling so overwhelmed at that event, unsure of what to expect. And then I met Stacy—and just like that, I didn’t feel so alone anymore. Her story is powerful. Stacy lost her mom to Huntington’s disease when she was younger. She later got tested and found out she does not carry the HD gene. But her younger brother tested positive and is now symptomatic. He is married and has a little one, and he is incredibly talented—every year at the convention, he would play guitar and sing in the talent show, always touching everyone’s hearts. Stacy has nev...