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Showing posts from August, 2025

HD Warriors: Remembering My Angel, Penny Riley

  For my next story, I want to share about someone who has had a huge impact on my life through the Huntington’s disease community. Her name is   Penny Riley , and I met her at one of the Swisher golf tournaments not long after I was gene tested. Penny was a firecracker of a woman! She worked as the Area Director for Northern California and Nevada and was in charge of marketing and fundraising for HDSA. Everyone loved her because she was personable, friendly, and so much fun to be around. But more than that, she had a way of showing up for families that was unmatched. She drove and flew all over to meet people, making sure no one felt alone in this fight. From the moment we met, she took me into her life and family. After that first event, I was hooked. I started attending everything, basketball shoots, gala dinners, walks, bowling nights, baseball games, local conventions, and national conventions. Penny became my guide and mentor. We traveled together, shared rooms at events...