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HD Warriors: Remembering My Angel, Penny Riley

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  For my next story, I want to share about someone who has had a huge impact on my life through the Huntington’s disease community. Her name is   Penny Riley , and I met her at one of the Swisher golf tournaments not long after I was gene tested. Penny was a firecracker of a woman! She worked as the Area Director for Northern California and Nevada and was in charge of marketing and fundraising for HDSA. Everyone loved her because she was personable, friendly, and so much fun to be around. But more than that, she had a way of showing up for families that was unmatched. She drove and flew all over to meet people, making sure no one felt alone in this fight. From the moment we met, she took me into her life and family. After that first event, I was hooked. I started attending everything, basketball shoots, gala dinners, walks, bowling nights, baseball games, local conventions, and national conventions. Penny became my guide and mentor. We traveled together, shared rooms at events...
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Still Blessed Through It All

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  Well, I cannot believe it has been another couple of months since I last posted. I have a lot to share with you. My husband and I both celebrated our birthdays last month. We kept it simple and fun. We went paddle boarding, and I had dinner with a group of my girlfriends, which was so special to me. I also had breakfast with two of my closest friends at a new place which I thoroughly enjoyed! I also went on a trail ride with a couple of my friends and I borrowed a horse who reminds me of my sweet horse who passed away.I had a wonderful time! "We also have some exciting travel plans coming up that I will share more about once everything is set. I recently had an appointment with Dr. Gates, who is the new holistic neurologist I have been seeing for the last two years! He has me do brain exercises and I have some tests eye scans I do when I'm there and I received some really great news. I am back up to my regular weight, which has been a huge struggle for me over the past coupl...
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Welcoming a New Year with Gratitude

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  Happy New Year! I cannot believe how quickly another year has arrived. Last year was not an easy one, but it was also filled with so many beautiful moments. God is so good, even in the hard seasons. One of the biggest blessings this past year was reconnecting with my old church. I met some new friends who invited me back, and the moment I walked in, it felt like coming home. That sense of belonging and faith has meant more to me than I can put into words. I am incredibly thankful for the family and friends who have stepped in to help me get everywhere I need to go. Losing the ability to drive has been a huge adjustment, but it has also shown me just how loved I am. I am especially grateful for the friends who take me horseback riding. Being with horses truly feels like heaven on earth to me. I am also so thankful for the people who call and text just to check in and see how I am doing. Those small moments of connection mean everything. I am blessed by the friends who make sure I ...
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