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Celebrating Friendship,Faith, and a True Warrior

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  HD Awareness Month: Celebrating Friendship, Faith, and a True Warrior Hello, friends! It’s May, which means it’s Huntington’s Disease Awareness Month—a time that is close to my heart. Every year during this month, I take time to spread awareness about HD, answer questions, and share more about what this journey has looked like for me. It’s also a special opportunity to honor the incredible people in my life who are walking this path with me. And this year, I want to highlight someone very near and dear to me—my best friend and fellow HD warrior, Amy Fedele! Amy and I first met at a local HD convention. She had taken over organizing the Sacramento walk that I originally started, and that day she was there promoting the event. We struck up a conversation, and something just clicked between us. Not long after that, we saw each other again at the national convention in Los Angeles. We spent so much time together there and by the time the September walk came around, we had already bec...
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2024 Reflections: Finding Joy in the Journey

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  As new year begins, I find myself reflecting on this past year with a heart full of gratitude. Despite the challenges, God’s presence in my life has been a constant source of strength. Living with Huntington’s disease is not easy, but His love and grace sustain me every single day. He fills my heart with joy, even when life feels overwhelming. One of the hardest adjustments this year was losing the ability to drive. Driving represented my independence, and giving that up has been a difficult transition. But through this challenge, God has shown me how truly blessed I am. My family and friends have rallied around me, ensuring I get where I need to go and making time for me in ways I never expected. Their support has been an incredible gift, and I’ve cherished the extra moments we’ve spent together. It’s a reminder that even in the hardest seasons, God is working to create something beautiful. I also want to take a moment to thank everyone who reached out to me this past year—wheth...
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"Counting My Blessings: A Season of Gratitude"

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As November rolls around, I find myself reflecting on everything I’m thankful for this year. It’s the perfect time to pause and appreciate the many blessings in my life. Sharing My Story First and foremost, I’m incredibly thankful for the opportunity to share my journey through this blog. Starting it earlier this year has been such a rewarding experience. It’s given me a platform to connect with others and put my thoughts and experiences into words. While I had hoped to post more frequently, I’ve learned to embrace my husband’s wise advice: do my best, let go of rigid schedules, and focus on the joy this brings me. My Rock, Fernando I can’t express enough gratitude for my husband, Fernando. He has taken on so much this year, especially since I’m no longer able to drive. From managing our finances and property to cooking, cleaning, and driving me to countless appointments, he does it all with love and patience. Navigating the challenges of my disability hasn’t been easy, but God truly k...
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