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Celebrating Friendship,Faith, and a True Warrior

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  HD Awareness Month: Celebrating Friendship, Faith, and a True Warrior Hello, friends! It’s May, which means it’s Huntington’s Disease Awareness Month—a time that is close to my heart. Every year during this month, I take time to spread awareness about HD, answer questions, and share more about what this journey has looked like for me. It’s also a special opportunity to honor the incredible people in my life who are walking this path with me. And this year, I want to highlight someone very near and dear to me—my best friend and fellow HD warrior, Amy Fedele! Amy and I first met at a local HD convention. She had taken over organizing the Sacramento walk that I originally started, and that day she was there promoting the event. We struck up a conversation, and something just clicked between us. Not long after that, we saw each other again at the national convention in Los Angeles. We spent so much time together there and by the time the September walk came around, we had already bec...
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2024 Reflections: Finding Joy in the Journey

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  As new year begins, I find myself reflecting on this past year with a heart full of gratitude. Despite the challenges, God’s presence in my life has been a constant source of strength. Living with Huntington’s disease is not easy, but His love and grace sustain me every single day. He fills my heart with joy, even when life feels overwhelming. One of the hardest adjustments this year was losing the ability to drive. Driving represented my independence, and giving that up has been a difficult transition. But through this challenge, God has shown me how truly blessed I am. My family and friends have rallied around me, ensuring I get where I need to go and making time for me in ways I never expected. Their support has been an incredible gift, and I’ve cherished the extra moments we’ve spent together. It’s a reminder that even in the hardest seasons, God is working to create something beautiful. I also want to take a moment to thank everyone who reached out to me this past year—wheth...
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Embracing Life: A Birthday Reflection on Gratitude, Family, and Memories

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There was a time when celebrating my birthday felt bittersweet. When I first found out I was gene positive, I struggled with the idea of getting older because it felt like each year was just a step closer to the unknown. But then God showed me how precious each day truly is. I realized that I was not symptomatic yet, and so many others were facing greater challenges than me. That was my wake-up call. I needed to start truly living, cherishing every moment, and making the most of the time I have been given. Looking back now, I see all the beautiful memories I have made, and I am so thankful for each one.   This year, I had a truly wonderful birthday. My husband surprised me with a cold plunge and sauna for our home, knowing how much I have benefited from them at the yoga studio. He set everything up so we could use it right away in the morning. We enjoyed a peaceful breakfast together, and later that evening, we went to dinner with his mom and stepdad at Zócalo’s.   One of the ...
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