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Sacramento HDSA Walk: How It All Began

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  I want to share the story of how I got involved in organizing the first five years of the Team Hope Walk - Sacramento. This is the Huntington’s Disease Society of America’s (HDSA) fundraising and awareness raising event in Sacramento. I had been actively volunteering with HDSA, helping with various events and activities. After attending several walks, I remember when Penny Riley, a wonderful woman who worked for HDSA, asked me if I’d like to host and organize the first walk in Sacramento. Penny has always been like a mother figure to me, and even after all these years, she’s still a part of my life—a true angel. I was beyond excited that Penny thought of me for this. My best friend, Kristen Stoll, and I co-ran the event. We pulled together an amazing team of friends and family to help with planning. We held our first walk in William Land Regional Park, a place that holds special memories for me, as it’s where I grew up. Friends and family, including my dad, helped gather raffle d...
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2024 Reflections: Finding Joy in the Journey

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  As new year begins, I find myself reflecting on this past year with a heart full of gratitude. Despite the challenges, God’s presence in my life has been a constant source of strength. Living with Huntington’s disease is not easy, but His love and grace sustain me every single day. He fills my heart with joy, even when life feels overwhelming. One of the hardest adjustments this year was losing the ability to drive. Driving represented my independence, and giving that up has been a difficult transition. But through this challenge, God has shown me how truly blessed I am. My family and friends have rallied around me, ensuring I get where I need to go and making time for me in ways I never expected. Their support has been an incredible gift, and I’ve cherished the extra moments we’ve spent together. It’s a reminder that even in the hardest seasons, God is working to create something beautiful. I also want to take a moment to thank everyone who reached out to me this past year—wheth...
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Celebrating Friendship,Faith, and a True Warrior

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  HD Awareness Month: Celebrating Friendship, Faith, and a True Warrior Hello, friends! It’s May, which means it’s Huntington’s Disease Awareness Month—a time that is close to my heart. Every year during this month, I take time to spread awareness about HD, answer questions, and share more about what this journey has looked like for me. It’s also a special opportunity to honor the incredible people in my life who are walking this path with me. And this year, I want to highlight someone very near and dear to me—my best friend and fellow HD warrior, Amy Fedele! Amy and I first met at a local HD convention. She had taken over organizing the Sacramento walk that I originally started, and that day she was there promoting the event. We struck up a conversation, and something just clicked between us. Not long after that, we saw each other again at the national convention in Los Angeles. We spent so much time together there and by the time the September walk came around, we had already bec...
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