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Celebrating Friendship,Faith, and a True Warrior

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  HD Awareness Month: Celebrating Friendship, Faith, and a True Warrior Hello, friends! It’s May, which means it’s Huntington’s Disease Awareness Month—a time that is close to my heart. Every year during this month, I take time to spread awareness about HD, answer questions, and share more about what this journey has looked like for me. It’s also a special opportunity to honor the incredible people in my life who are walking this path with me. And this year, I want to highlight someone very near and dear to me—my best friend and fellow HD warrior, Amy Fedele! Amy and I first met at a local HD convention. She had taken over organizing the Sacramento walk that I originally started, and that day she was there promoting the event. We struck up a conversation, and something just clicked between us. Not long after that, we saw each other again at the national convention in Los Angeles. We spent so much time together there and by the time the September walk came around, we had already bec...
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HD Warriors: Remembering My Angel, Penny Riley

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  For my next story, I want to share about someone who has had a huge impact on my life through the Huntington’s disease community. Her name is   Penny Riley , and I met her at one of the Swisher golf tournaments not long after I was gene tested. Penny was a firecracker of a woman! She worked as the Area Director for Northern California and Nevada and was in charge of marketing and fundraising for HDSA. Everyone loved her because she was personable, friendly, and so much fun to be around. But more than that, she had a way of showing up for families that was unmatched. She drove and flew all over to meet people, making sure no one felt alone in this fight. From the moment we met, she took me into her life and family. After that first event, I was hooked. I started attending everything, basketball shoots, gala dinners, walks, bowling nights, baseball games, local conventions, and national conventions. Penny became my guide and mentor. We traveled together, shared rooms at events...
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Embracing Life: A Birthday Reflection on Gratitude, Family, and Memories

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There was a time when celebrating my birthday felt bittersweet. When I first found out I was gene positive, I struggled with the idea of getting older because it felt like each year was just a step closer to the unknown. But then God showed me how precious each day truly is. I realized that I was not symptomatic yet, and so many others were facing greater challenges than me. That was my wake-up call. I needed to start truly living, cherishing every moment, and making the most of the time I have been given. Looking back now, I see all the beautiful memories I have made, and I am so thankful for each one.   This year, I had a truly wonderful birthday. My husband surprised me with a cold plunge and sauna for our home, knowing how much I have benefited from them at the yoga studio. He set everything up so we could use it right away in the morning. We enjoyed a peaceful breakfast together, and later that evening, we went to dinner with his mom and stepdad at Zócalo’s.   One of the ...
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