Still Blessed Through It All

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 Well, I cannot believe it has been another couple of months since I last posted. I have a lot to share with you.

My husband and I both celebrated our birthdays last month. We kept it simple and fun. We went paddle boarding, and I had dinner with a group of my girlfriends, which was so special to me. I also had breakfast with two of my closest friends at a new place which I thoroughly enjoyed! I also went on a trail ride with a couple of my friends and I borrowed a horse who reminds me of my sweet horse who passed away.I had a wonderful time! "We also have some exciting travel plans coming up that I will share more about once everything is set.

I recently had an appointment with Dr. Gates, who is the new holistic neurologist I have been seeing for the last two years! He has me do brain exercises and I have some tests eye scans I do when I'm there and I received some really great news. I am back up to my regular weight, which has been a huge struggle for me over the past couple of years. My body burns calories so quickly due to all of the movement with HD, and it makes it even harder to maintain weight. I have been working really hard to eat more, so this felt like a big win. I'm still not on any medication but I do have vitamins that I take instead.

I also want to be honest and share something that has been really hard. As my HD has progressed and I no longer have my license, it has affected my friendships. There were people who once said they would be there for me when things got difficult, but unfortunately, I have lost many of those relationships. That has been very heartbreaking.

At the same time, I feel incredibly blessed for the people who have stayed. My husband continues to be my rock, and I have a small group of people in my life who truly show up. They call, they make plans, and they go out of their way to spend time with me and do things that I enjoy. Some of them even come pick me up so I can still get out and live my life. That means more to me than I can even express.

I am still going to yoga, which has been really good for me, both physically and mentally. I am also still volunteering with Infinite Friends, a group for adults with disabilities in Citrus Hieghts, and it continues to bring me so much joy.

Even with everything that comes with Huntington’s Disease, I can truly say that God is good. I feel so blessed for the life I have, the people who love me, and the ability to keep doing the things that bring me happiness.

Thank you for being here with me on this journey. 💙

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